Welcome to the summer playlist, have a sit, have a read, enjoy.
It’s been so long, I don’t even know where to start.
We will leave the Cambridge Plans for the next chapter in the Cambridge Diaries.
Let’s start with the Incredible Edible Ella Bella…
Yesterday, Ella had her vision appointment. While she has always had astigmatisms in both eyes her Dr. never felt the need for glasses. As it would turn out, her left eye has actually gotten a bit bet while her right has stayed the same. All thumbs up and we are good to go for another year!
We are also preparing for Ella’s ear examination under anaesthetic. Fluid in her ears have been a consistent problem lately as it often is with little ones with DS. Their ear passages are small and easily blocked. We had a consult with the ENT and she suggested doing an examination with Ella under anaesthetic and if there is still fluid in the middle ear they will put tubes in and do another ABR. And ABR is a hearing test done while the patient is sleeping and measure the brain’s response. What we are hoping for is that Ella’s hearing loss is because of the fluid and not permanent.
Other than that she is doing great. She is very active, determined and communicative. I am amazed at the things she learns, the way she socializes and the little idiosyncrasies she picks up. Let’s just say, it’s not how I would expect a child with Down Syndrome to be but what do I know.
With fewer appointments, no therapy or PREP we have been doing our best to make the most of summer.
On days when we refrained from loitering at the new splash park, we have…
listened to gypsy music while taking a stroll through Princess Island Park
Marvelled at my blue eyed babes.
Wondered at nature’s ordinary miracles
Celebrated our Country’s Birthday
Given thanks for hands to hold when our step is weary
Taken in Alberta’s unique beauty
Gone to the zoo
Watched a silly monkey have the time of his life
Blown bubbles in the early morning
Thanked God for not leaving us to fend for our selves
There’s more to say. So much I want to tell you. Like what it was like to go to an Anglican church for the first time in too long. How the hunt for a home can throw me into a existential crisis and how my children amaze me everyday. But the sun calls, as does my running partner…
Happy Hump Day!