Tuesday, July 19, 2011

Our Town

It's no secret that Jakob's favorite movie is Cars. He is waiting patiently for the day he gets to see Cars 2, which will be on his birthday and he would also like a Cars cake. We have watched Cars 1 however, over and over until you can recite each line with perfect intonation. The sound track is familiar and Jakob's first choice on the juke box including a song by James Taylor called "Our Town" and the lyrics go like this:

Long ago, but not so very long ago
The world was different, oh yes it was
You settled down and you built a town and made it live
And you watched it grow
It was your town

Time goes by, time brings changes, you change, too
Nothing comes that you can't handle, so on you go
Never see it coming, the world caves in on you
On your town
Nothing you can do.

Main street isn't main street anymore
Lights don't shine as brightly as they shone before
Tell the truth, lights don't shine at all
In our town

Sun comes up each morning
Just like it's always done
Get up, go to work, start the day,
Open up for business that's never gonna come
As the world rolls by a million miles away

Main street isn't main street anymore
No one seems to need us like they did before
It's hard to find a reason left to stay
But it's our town
Love it anyway
Come what may, it's our town.


It sounds all too familiar in this little town of Three Hills. Half the buildings on Main Street stand empty and main street itself often feels deserted. But there is a charm and a spirit that hides in the shadows and pops it's leery head out every once and a while....like on parade day.




Crowds line the streets as the kids run out to fill their buckets full of candy...because out here, a float is not a float unless there is candy. You can be driving a run of the mill beater but if you have candy, you're a winner!




As an outsider looking in, you can catch a glimpse of the way things used to be, with men gathered round, drinking coffee after the morning chores. And it's chance to show off what was.



And what is.


To be a kid again...


We have one week left in this little town. And while this city girl will be glad to have a break from rural life I have appreciated Three Hills and the unique beauty of Alberta. I have been trying to capture what I know I will miss...or forget, like harvest moons over open fields


The mysteries hidden in the badlands


And rickety bridges over slow moving rivers.


Alberta. The place where I met my husband and my dear Ella was born.

We leave thankful for the experiences that we have had and the friends that we have made. I am sooooooo thankful for the support that we have been showered with as we have given Ella the best that we were able.





Like her ENT (ear, nose and throat) specialist who on Monday, under general anaesthetic examined Ella's ears only to find out that Ella didn't have fluid after all: just a whole lot of wax that was causing a whole lot of confusion.
Praise the Lord.

We couldn't ask for better circumstances or a healthier little girl! Or boy for that matter. We are blessed.

Wednesday, July 13, 2011

The Ups and Downs of Down Syndrome

The other day, as the kids were playing with the trains in our not-so-local bookstore, I happened to browse the Parenting section. I don't go there often but it was that or board books if I was to keep a proper eye on the kids. I am always naturally curious to see if they have any books on Down Syndrome as I feel its the only thing in my life that seems to have a articulated label but to my surprise (okay, I wasn't really surprised at all) there were NO books on Down Syndrome.


There was a whole shelf on Autism and Aspergers, books on ADHD, and some general books on parenting a child with special needs.  It's not like Down Syndrome is all that uncommon, especially in Canada and while it is not federally discriminated against lets face it: it's "cool" to have autism but not to have Down Syndrome. Now, I don't really care, but I thought it was worth bringing up. Ask any DS clinician and they will tell you Autism gets the funding whilst DS is old news. And I guess that it is, or is it that us as parents of children with DS just don't need the hype? I suppose one could say it is because Autism is relatively new, whereas DS has been around a while and everything can be summed up in one little chromosome, (which I hope you have figured out from reading my blog: it can't). Because every child is unique and has their own personality, even those with DS. While they share common traits like the fact that they all have some version of an extra 21st chromosome or that they all have eyes, they are as different as the grains of sand on a beach. 


I am going to let you in on a little secret: kids with Down Syndrome aren't always happy and they probably catch on to more than you give them credit for. Ella isn't stubborn because she has Down Syndrome. She is stubborn because her mommy is stubborn.
Ella is only two but her personality shines through. She is an observer and likes to watch the world go by but if you try to feed her she'll let you know that she is big enough to feed herself and if you leave her by herself for 30 seconds she'll pull out every piece of clothing she owns from her wardrobe. She can make anyone feel like they are worth a million bucks with one small embrace, but only if you are a grandparent type figure or a female older than she is. She doesn't like babies or little boys (except of course, her brother). She doesn't like strawberries, carrots or cheddar cheese, but loves indian food and more expensive cheeses like feta or asiago. She loves to read to herself, sing and dance and really wants an ipad for Christmas.

**This post is not at all what I expected it to be and I don't know how to end it, but I just thought it was worth bringing up so.... that's all I have to say about that.

Tuesday, July 12, 2011

The Cambridge Diaries: School

There are natural transitions in life. Expected changes that you have prepared yourself for years ahead of time. Changes that ebb and flow and you can ease into like a well worn pair of jeans. And when they come: you are ready. Being the planner that I am, I have mapped out the key chapters of my life and I embrace change when it is forewarned and productive. When life however, does not go as planned, there is part of me that panics, digs in my heels and needs time to process what exactly is going on. Spontaneity is not a regular part of my life and everyday follows the same basic routine.
Cambridge, however was not a planned chapter. And while I am completely okay with carrying out "the plan" under different circumstances, like with a unexpected twist like, say, oh, I don't know….. Down Syndrome or on a different continent there are definitely other areas of the plan that are affected by such changes. For example, my financial strategy is faced with major issues as we sacrifice income for a year while dishing out tens of thousands of dollars which otherwise would have been pour into home equity and instead we will put towards yet another piece of paper saying that we completed something. On the other hand, my husband, will increase his earning potential for the years to come and my children and I will have a once in a life time cultural experience that we otherwise would not have dreamed of. 
But in reality, the life that I had pictured in Cambridge was similar to the life we lead here in Three Hills, but far less hectic and far more filled with historical, cultural and visual inspiration. I thought about spending our days, just the kids and I, wandering the streets of Cambridge, stopping at the market, having picnics and taking photographs. I thought about having nothing pushing us out the door except our own drive and no responsibility aside from making sure our basic needs were met.
You see here in Canada, Jakob is not scheduled to start school until next year when he will be five so I saw our move to Cambridge as perfectly timed. I missed the fact however, that in England children start school the September after their FOURTH birthday! It is not mandatory for them to start until they are 5 but is definitely more common to start earlier rather than later. So I began exploring the idea of school.  Not only practically but the thought of sending my little boy into the care of another for 6 hours a day, 5 days a week. Something I was quite looking forward to in a year or two (depending on which province you live in) but was not expecting to do this year.
He went to preschool this past year and loved it but it was only two mornings a week. Jakob is very bright and thrives when he is learning, exploring and socializing so the truth is, I am not really worried about him. He never complained about going to school and I would hope that if he went everyday, he would feel the same way.
It is more I, that I am worried about. It is a huge transition and an unexpected one. One that robs us of the liberty to come and go as we please. It will mean that there will only certain times when I will get to experience Cambridge with Jakob and I will have to carefully plan out activities that are on our "must do" list. Not only that but I will not have the company of my favourite little boy (sous chef and helper) for a good portion of my day and Ella will be without her playmate and best friend. 
The decision to send Jakob to school carries much weight and one worthy of of proper research and consideration. At first there was much frustration and disappointment when school after school turned up full with lengthy wait lists. If I was going to send Jakob to Reception, I did not want to have to cart him half way across the city on foot….in the rain. I would also have to wait until we lived in Cambridge to even apply for a state schools (public school).
When we were looking for accommodation however, I came across a school called Sancton Wood. The small plaque gave name to an old English Mansion covered in foliage. Desperate for the option, I immediately googled the name and found out that this small independent (private) school was founded 1976 on the principals of inclusion, equal opportunity and academic excellence. The school prides itself in its family atmosphere, the social and emotional development of their students with classes of only 15 students as opposed to the normal 30. The school calendar shows a broad curriculum with and lots of outings. 
Our place is yet to be confirmed however they do have one space left in Reception and I am excited about the possibilities. I think this would be a great opportunity for Jakob and would add to his England experience exponentially. It was would be a wonderful way to get socially integrated and see the city of Cambridge as well as the surrounding area. Sancton Wood has received excellent reviews and when I asked our potential landlord about her thoughts on the school (she works in the Faculty of Education at the University and is part of the Primary Review) she said that she sent her own children there. Her oldest son had a a speech problem and because of the school's excellent program with a focus on inclusion she enrolled him and he went on to graduate with top grades. Her youngest daughter still attends and is in year 4.
Unexpected change can be hard to adjust to but sometimes it also creates unexpected outcomes that are better than we could have planned for. I am hoping this is the case. 


Friday, July 8, 2011

Stampede Style and other Canadian Adventures.

Today we embarked on a Canadian Tradition. The greatest outdoor show on earth: The Calgary Stampede. It was a first for me and the kids and I really wasn't sure what to expect except a lot of cowboy hats. And oh, were there cowboy hats, but that is part of the beauty of it. While some see it to be a rowdy, overcrowded waste of money I think there is an original spirit, somewhere deep down that says something about Canadians and our desire to work together, celebrate our achievements and have fun. Look at Will and Kate. Where else can they wear their own jeans? Anyway, here are a few picks from the day.




Besides, its one more thing I can check off my list:

Things I have done in Canada:

Shopped at the Granville Island Market
Watched a Cricket Game in Stanley Park
Gone to the Pacific National Exhibition
Swam with the Dolphins at the Vancouver Aquarium (not really, just pretend from behind glass)
Walked Jericho beach at Sunset
Watched the Vancouver Canucks, BC Lions and Vancouver Grizzly's (Rest in Peace), Calgary Flames and Edmonton Oilers show their game
Shopped Robson Street
Ridden the BC Ferries
Felt the Power of the waves at Tofino
Watched a hockey game in West Edmonton Mall
Hiked up to the Tea house at Lake Louise
Tapped into my inner Cowgirl at the Calgary Stampede
Had a Lobster Feast at Peggy's Cove (At least the lobsters were from there)
Drank a beer in a Irish Pub in Halifax
Ate Bannock and Moose stew on a Reserve in Ontario


Still to do:
Have tea at the Empress
Make Maple Syrup in Quebec
See the Parliament Buildings (Ottawa)
Go to Canada's Wonderland
Visit the home of Anne of Green Gables
Have a kitchen party in Newfoundland
Feel the mist of Niagara Falls
Ride a Dog Sled

Plus so much more I am just not remembering right now. So, whats on your list?

Wednesday, July 6, 2011

Summertime and the living is ______________

Welcome to the summer playlist, have a sit, have a read, enjoy.

It's been so long, I don't even know where to start.

We will leave the Cambridge Plans for the next chapter in the Cambridge Diaries.

Let's start with the Incredible Edible Ella Bella...


Yesterday, Ella had her vision appointment. While she has always had astigmatisms in both eyes her Dr. never felt the need for glasses. As it would turn out, her left eye has actually gotten a bit bet while her right has stayed the same. All thumbs up and we are good to go for another year!

We are also preparing for Ella's ear examination under anaesthetic. Fluid in her ears have been a consistent problem lately as it often is with little ones with DS. Their ear passages are small and easily blocked. We had a consult with the ENT and she suggested doing an examination with Ella under anaesthetic and if there is still fluid in the middle ear they will put tubes in and do another ABR. And ABR is a hearing test done while the patient is sleeping and measure the brain's response. What we are hoping for is that Ella's hearing loss is because of the fluid and not permanent.

Other than that she is doing great. She is very active, determined and communicative. I am amazed at the things she learns, the way she socializes and the little idiosyncrasies she picks up. Let's just say, it's not how I would expect a child with Down Syndrome to be but what do I know.

With fewer appointments, no therapy or PREP we have been doing our best to make the most of summer.

On days when we refrained from loitering at the new splash park, we have...

listened to gypsy music while taking a stroll through Princess Island Park

14/1000

Marvelled at my blue eyed babes.

15/1000

Wondered at nature's ordinary miracles

16/1000

Celebrated our Country's Birthday

17/1000
Given thanks for hands to hold when our step is weary

18/1000

Taken in Alberta's unique beauty

19/1000
Gone to the zoo

20/1000
Watched a silly monkey have the time of his life

21/1000
Blown bubbles in the early morning

22/1000
And watched them pop

23/1000
Thanked God for not leaving us to fend for our selves

24/1000
There's more to say. So much I want to tell you. Like what it was like to go to an Anglican church for the first time in too long. How the hunt for a home can throw me into a existential crisis and how my children amaze me everyday. But the sun calls, as does my running partner...

Happy Hump Day!

Saturday, July 2, 2011

Foody Friday

Confession: I am at a loss without my cookbooks. I love food, I love to cook but here in my new pint-sized kitchen, my cookbooks packed away and no friends to cook for (because I am hesitant to entertain) there is a void in my life. I like to have an audience for my culinary creations. On top of all of this, I am trying to use up everything in my cupboards and freezer so that one month from now friends and family don't have to get oversized care packages of corn starch and raisins.

So I thought about starting a new series on my blog: Foody Fridays.
A recipe of my own creation using whatever needs to be used up. The only thing is that
a.) I don't know if I have the discipline to do this every week
b.) I am not sure if my readers would be interested. (I would love your feedback)

Here is a little sample. It is not Friday but Foody Friday sounds better than Succulent Saturdays. No?

Today, the goal was to use two freezer items. I had half a bag of frozen berries and a small amount of almond meal and thus we have Almond pancakes with berries and cream. While these beauties are gluten free they are not low fat or vegan friendly. And please excuse the poor food photography.



Ingredients:

2 1/2 cups of Blanched Almond Meal or flour
1/2 tsp baking soda
1/3 cup of sugar (this could be replaced with agave nectar or honey)

4 eggs
1/2 cup of heavy cream
1/2 cup of butter (melted)
tsp of vanilla

Method:
Mix together dry ingredients in a large bowl. In a separate bowl mix together wet ingredients and them combine with dry ingredients. Pour into buttered pan at medium heat. (Almond meal doesn't stick together nicely like regular flour so I find it helps to put a lid on to help them cook through faster without burning the outside.

Sauce:
2 cups of mixed berries (frozen or fresh)
1 Tbsp Corn starch
Sugar is optional

Heat berries over low heat and add sugar if desired. In a small bowl mix corn starch with about a tbsp of water and whisk until smooth. Poor corn starch liquid into boiling berries stirring consistently. Let simmer for at least 5 minutes. I like my berry sauce thick so my pancakes don't get too soggy.

Whipped Cream optional.

They are a good alternative to your regular white pancakes that lack any sort of nutritional value. I would love to know what you think!
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